CBPR

What constitutes CBPR?

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MARKETI have recently been mulling over what is and isn’t CBPR.  In particular I was looking for clarity about its relationship to action research.

The terms are often used interchangeably as well as signifying two different types of research. There are various explanations and definitions depending on which country you are in and which discipline your research takes place in.

I settled on two well-known texts written by my favourite authors on the topic of community based participatory research in health.

  • Israel, B. A., Eng, E., Schulz, A. J., & Parker, E. A. (2013). Methods for Community-Based Participatory Research for Health (2nd ed.). San Francisco CA: Jossey-Bass.
  • Minkler, M., & Wallerstein, N. (Eds.). (2008). Community-based participatory research for health: from process to outcomes. San Francisco, CA: Jossey-Bass.

A third text set out nicely the main features to be found in action research.

  • Koshy, E., Waterman, H., & Koshy, V. (2011). Action research in healthcare. London: SAGE.

This is what I think these texts are telling us.

Action research

  • is also known as PAR, community-based study, co-operative enquiry, action science and action learning (Koshy et al. (2011)
  • is mostly conducted in collaborative teams, a community of enquiry, that includes service users who are not researched on, but collaborate within the research team.
  • is participatory and collaborative

CBPR

  • “no one set of CBPR principles is applicable to all partnerships” (Israel et al., 2013 p. 7)
  • key concepts of CBPR are participation, emancipatory knowledge and power relations
  • CBPR involves the interconnected goals of research, action and education

 

Israel et al. (2013) list PAR as one of several collaborative research approaches which have progressively been termed CBPR, particularly in health related fields. PAR grew from social movements and emphasized the importance of voice (Minkler & Wallerstein, 2008).

Minkler & Wallerstein (2008) describe CBPR as a continuum of approaches ranging from action research which is based in the practical problem-solving work of Kurt Lewin and the ‘more revolutionary’ Freirian tradition based on emancipatory education. They use the term CBPR as an umbrella term for an orientation to research and practice which stresses respectful engagement with communities in combining research with education and action for change.

 

COMMUNITY-BASED PARTICIPATORY RESEARCH CONTINUUM
COMMUNITY-BASED PARTICIPATORY RESEARCH CONTINUUM

Action research, to varying degrees, involves people affected by a problem, in practical problem solving through a cyclical process of fact finding, action, and evaluation, and sits at the starting point of the continuum. The common thread seems to be that participatory approaches such as action research and CBPR are committed to engagement and power-sharing  with community partners in the research process so that communities benefit from the research (Israel et al., 2013) .

Minkler and Wallerstein (2008) suggest that CBPR is a term being used to signify collaborative research approaches, ranging from action research to PAR, with the gold standard for ending health disparities being at the emancipatory end of the continuum.

Elena Wilson 2015

Rural Links – Canadian Rural Health Research Society

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I was recently asked to write a few words for the newsletter of the Canadian Rural Health Research Society about the CBPR project I have been involved in as part of my PhD.  My reflection was published in the August 2015 Special Edition of the newsletter, Rural Links and is included below.  This special edition, edited by the talented Silvia Vilches, includes some great reading so please have a look here. 

Canadian Rural Health Research Society: Special Issue August 2015
Canadian Rural Health Research Society: Special Issue August 2015

Ethical implications of Community-Based Participatory Research (CBPR)

Despite recognition of CBPR as an equitable, empowering research approach, recruitment difficulties and ethical challenges were experienced in a partnership project between the La Trobe Rural Health School (Australia) and 3 rural health services in 3 different communities. We focus on our experiences in one small rural township, population 3,000, in a bush-land setting approximately 150 kilometers inland from the south-eastern coastline of Australia.

Despite our best intentions and following CBPR principles carefully, we had difficulties in reconciling the formal ethical standards for recruitment with the expectations of potential participants and the research partner. We decided to formally investigate the challenges of using a CBPR approach for achieving community participation, focusing on one rural community in particular.

The recruitment protocol was problematic in two ways. First, our formally approved research recruitment plan included community information sessions to develop credibility and trust, yet the expectation of the health service partner was to have us ‘in’ the community actively developing relationships to attract participation. Second, the formal recruitment paperwork and process required by our ethics committee conflicted with a more social process of informing and gaining consent better suited to this community.

We were not the only organisation interested in this community. The high level of disadvantage, aging population, and above average rates of obesity and chronic disease meant that several other consultations and research projects were taking place at the same time we were scheduled to commence recruitment. The health service partner became concerned about over-consultation burdening the community and requested that we delay recruitment by 3 months.

As ‘outsiders’ we needed to find a way ‘in’ to the community, sometimes walking a fine line between the formally approved processes and the informal relationship building necessary to gain community trust to build interest in the project. What we did not expect was the high level of distrust community members had towards us as university researchers. In fact, as time went on, we discovered that active negative gate-keeping had taken place which limited the reach of our recruitment drive. This sense of distrust seemed to also be present between community member agencies, with over seventy community groups working in silos, often for similar goals, yet making no attempts to work together. Trying to work with a fragmented community added a layer of complexity to our recruitment attempts.

We were perplexed by our situation. Applying what is seemingly an equitable and empowering approach turned out to be fraught with difficulties. We wondered if other researchers using CBPR had the same issues. To identify the ethical challenges experienced by CBPR researchers at an international level we conducted a scoping review. We also created a blog http://www.cbprethics.wordpress.com as a data collection site and invited researchers to write on the blog about the ethical issues they experienced at key stages of their CBPR process. (This blog is still active at time of publication).

The ethical challenges discussed to date on the research blog focus on informed consent processes and research rigour. Other researchers also see the formal informed consent process as intimidating and a barrier to engagement and discussed the need to explore how to best provide a consent process that is meaningful for communities. Compromised research rigour is a concern and researchers highlight the need to negotiate community cultural expectations with ethics approved processes, and conflicting interests between research partners and community members. Other challenges discussed by researchers can be read at http://www.cbprethics.wordpress.com.

The ethical challenges discussed on the blog to date are similar to those identified in our scoping review literature, suggesting some consistency in the types of issues encountered. Despite the challenges encountered in CBPR, it is a well-intentioned approach that we still see as important for working with rural communities. It led to successful community collaborations across our rural partnership project overall, but we agree with Minkler (2008), who recommends greater attention be paid to ethical considerations.


Elena Wilson, PhD Candidate, La Trobe Rural Health School, College of Science, Health and Engineering, La Trobe University, Australia | E.Wilson@latrobe.edu.au

Amanda Kenny, Professor, La Trobe Rural Health School, College of Science, Health and Engineering, La Trobe University, Australia

Virginia Dickson-Swift (PhD), Senior Researcher, La Trobe Rural Health School, College of Science, Health and Engineering, La Trobe University, Australia

Reference: Minkler, M., & Wallerstein, N. (Eds.). (2008). Community-based participatory research for health: from process to outcomes. San Francisco, CA: Jossey-Bass

Participation: What counts?

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The Grapevine
The Grapevine

Community participation is central to CBPR.  Although definitions of community participation are many and various we understand community participation generally as working together with members of a community to achieve mutually beneficial outcomes in an equitable and ethical manner.

When we undertake CBPR with a community, what does participation actually look like?  Meredith Minkler (2004) cautions researchers about the fluid boundaries of what might constitute community participation and meaningful and ‘valid’ research.

The commitment of researchers to adhere to methods and approaches that lead to valid and reliable findings and that are commensurate with scientific rigour might serve to complicate the idea of community participation further.  In my own experience, I know that participation means that community members have to validate their participation by signing a consent form and coming along to meetings and events which are part of the CBPR process.

The quandary for me lies in the validation of participation.  When I was entering the community with which I was researching, I had casual conversations, sometimes opportunistically, with individuals and community groups.  This was part of the trust building and relationship development that is so crucial to the CBPR approach.  Yet it seems that this phase can all too easily be glossed over as a ‘given’ of participatory research.  What was clear to me, during this period of first steps into the community, was that those who did not want to ‘sign up’ as participants were in fact participating by willingly discussing their concerns with me in an informal manner and in informal spaces. Some individuals were pivotal to my endeavour to recruit ‘consented’ participants, by pointing out potential interested parties, making introductions at community events and helping to promote the research within their own networks.  These were the people who gave me an anchor to latch onto each time I entered the community in those early months.

I have no doubt that some of the relationships and behaviours within, and resulting from, social hierarchies in the community contributed to the decision for some to not participate officially in the research. Draper, Hewitt and Rifkin (2010) remind us that the diverse and complex nature of communities requires community participation to be approached as a social process, enabling participation to take many forms.

So should individuals and groups, such as those mentioned above,  be considered participants?  They welcomed me into the community, voiced their opinions on the research topic, and assisted the research process.  Is what they were doing, participation?  Because they did not sign a consent form, and did not participate in the official CBPR community meetings they are not officially participants and their opinions on the research topic cannot be considered as part of the research data.  Is it ethical to regard their unofficial involvement as a silent ‘given’ of CBPR?   Is it ethical to not validate their participation?   Do they count?

What are your thoughts?  What is your experience?

 

 

Draper, A. K., Hewitt, G., & Rifkin, S. (2010). Chasing the dragon: Developing indicators for the assessment of community participation in health programmes. Social Science & Medicine, 71(6), 1102-1109.

Minkler, M. (2004). Ethical challenges for the “outside” researcher in community-based participatory research. Health Education & Behavior, 31(6), 684-697.

Image: Seng Mah: Flickr.com

 

4 tips to improve your research recruitment experience

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As a result of the recruitment challenges I experienced in my project I have compiled some suggestions that could be useful to CBPR researchers who are planning for the recruitment phase of their study.

Recruitment Challenges?
Recruitment Challenges?

1.  Clarify expectations

Clarity about expectations of all parties in the partnership well before commencing is important. Clarifying formal research protocols to the research partner (organisation) can help in gaining cooperation to achieve recruitment goals as will the explicit statements from the research partner about its expectations from the research and the researchers.

2.  Identify key community members

Identify and get to know key community members. They are able to take on the role of mediator to physically introduce researchers and the research to people in their networks and to confirm the identity and trustworthiness of the researchers. Personal introductions by a community member who is well liked and respected, can be more valuable to the community for understanding the presence of the researchers and the project, than written information and consent form.

3.  Be specific

Avoid promoting the research project with a nebulous or too broad a topic. People seem to engage with research less reluctantly if there is a more specific topic being discussed, and once engaged the opportunity opens up for exploring topics further afield.

4.  Do CBPR training

The complexities involved in managing a relationship with a partner organization and the community, highlight the importance of training for CBPR researchers prior to commencing contact with members of the community they are to research with. Being armed with knowledge of potential recruitment pitfalls with particular communities, means that the researcher would be better placed to plan for these and therefore design the research and ethics application to include a broader range of recruitment options so that ethics requirements do not impede or prolong recruitment.

 

Good Luck!

 

Image: Jim Frazier: Flickr.com

“ . . . the real and the ideal in CBPR are still a work in progress . . .”

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 “…the real and the ideal in CBPR are still a work in progress for the majority of projects.”
“…the real and the ideal in CBPR are still a work in progress for the majority of projects.”

Kraemer Diaz, A. E., Spears Johnson, C. R., & Arcury, T. A. (2015). Perceptions That Influence the Maintenance of Scientific Integrity in Community-Based Participatory Research. Health Education & Behavior. doi: 10.1177/1090198114560016

In this recent publication the authors present findings from their investigation into the perceptions that promote and discourage scientific integrity in CBPR.  In depth interviews were held with professional and community CBPR investigators.

Professional investigators identified external pressures as the main barrier to scientific integrity in CBPR.  External pressures, such as publishing, applying for funding and career advancement are seen to promote traditional research structures which do not include collaboration.  The authors point out that these external pressures discourage scientific integrity in CBPR by undermining community participation, a foundational aspect of CBPR.

While community investigators were found to not be subject to the same pressures, their perceptions demonstrated that community participation is “paramount” for maintaining scientific integrity in CBPR.

The authors conclude that “active” community participation is overall the most important perception in maintaining scientific integrity in CBPR and emphasise that it is not enough to just idealise participation, but that it needs to be “realized through training, shared funding, and community trust and engagement at every step, including oversight of scientific integrity”.

 

Image: roevin Flickr.com

Research Story-telling

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Stories about community research challenges
Stories about community research challenges

If you are thinking about writing on this blog about the issues in your CBPR work, have a look at what others are writing on this topic too.

CBPR has many benefits for the community research endeavour, but acknowledging and sharing our stories about what it is really like for researchers actually doing the research with communities, can help beginner researchers to be better prepared before venturing into CBPR work. Your story might be about a smooth sailing project with no issues at all or a project with issues significant enough to keep you awake at night.

Sometimes it helps to read what others have written about this.
Read the contributions on this blog, some of these might sound familiar? but different?
Read the insightful blogging on the subject by Daniel Reeders on The Research Whisperer blog. Daniel gives a “personal account based on things that went awry” in his work.

Then, you might like to add your story to the collection, along-side other CBPR researchers around the world.

Happy reading!

 

Image: Flickr.com

How to carry out a successful CBPR partnership

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How to carry out successful CBPR partnerships
How to carry out successful CBPR partnerships

Promoting Healthy Public Policy through Community-Based Participatory Research: Ten Case Studies

Although not new, this report still has relevance for researchers engaged in community based participatory research and their research partners today. The report looks at 10 case studies of different CBPR partnerships in the US, that are focused on changing policy to improve community health.

Practical recommendations for successful partnerships are made on pages 51 to 54.  Read Report …

 

Image: Filipe Cabrera: Flickr.com